The CHARGE Syndrome Association of Australasia is a not-for-profit organisation committed to improving the health and welfare of children and adults with CHARGE Syndrome. The Association supports families in Australia and New Zealand to enable children and adults with CHARGE Syndrome to reach their full potential.
The Association was formed in 1988 to assist families whose children were born with this rare condition. The Association subsequently became a registered company in 1996.
The condition was first identified in 1979 in the USA, the acronym CHARGE was given in 1981.
Since the formation of the parent support group in Australia, 1994, conferences have been held every 2 years. A newsletter is produced quarterly, fundraising activities occur and planning for future needs of these children and young adults is a major consideration.
Families of newly diagnosed children with CHARGE are provided with an information package on request, and parent and professional representatives are available to discuss CHARGE with any interested persons.
Interested medical and educational professionals have involved themselves in gaining data about children in Australia and New Zealand. Sych professionals also keep abreast with current developments locally and internationally.
The business plan produced to cover from 2005-2009 contains more information on the organisation. Contact your local representative for a copy of this report.
