Online course: understanding CHARGE Syndrome

Understanding CHARGE Syndrome is a 6-8 week free online course via an innovative training tool called a MOOC (massive open online course). The course will be open to anyone in the world with an interest in CHARGE syndrome:

  • People living with CHARGE syndrome, their families and carers

  • Medical and nursing professionals

  • Allied health professionals

  • Teachers and educators

  • Advocates, service delivery staff, support workers, planners

We hope this MOOC will significantly raise awareness of CHARGE syndrome amongst health and educational professionals and will strengthen the capacity of families and care givers.

Course content

The content and delivery of this course offers quality education on the latest knowledge and research on CHARGE syndrome from the world’s foremost experts in the field, including:

  • Diagnosis and medical aspects of CHARGE and genetics

  • Communication and sensory integration

  • Behaviour and social interactions

  • Education and the adult years

Our Academic Leads

Rob Last AM (Teacher of the Deaf, Australia)

Dr Kim Blake (Paediatrician, Canada)

Dr. Daniel Choo (ENT specialist, US)

Dr Jeremy Kirk (Endocrinologist, UK)

Meg Hefner (Genetic Counselor, US)

Prof Nancy Salem-Hartshorne (School Psychologist, US)

Prof Tim Hartshorne (Psychologist, US)

David Brown (Deafblind Consultant, US)

Kasee Stratton-Gadke (Psychologist, US)

Angela Arra (Complex Care Nuse, Canada)